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Keywords: Rare disease
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Journal Articles
Public Health Genomics (2021) 24 (3-4): 75–88.
Published Online: 23 March 2021
... not have binding requirements for genetic counseling. Conclusion: Lack of harmonization of regulations governing NH studies with molecular biomarker collection contributes to the operational complexity of conducting multinational studies in orphan and rare diseases. A set of harmonized international...
Journal Articles
Public Health Genomics (2019) 22 (3-4): 77–101.
Published Online: 21 October 2019
..., instructions or products referred to in the content or advertisements. Patient Big data Regulatory systems Member states Enablers Innovation Commission EU Genomics Registry Pan-cancer Rare disease Personalised healthcare Molecular diagnostics Therapeutics Discussion Public Health...
Journal Articles
Public Health Genomics (2014) 16 (6): 322–335.
Published Online: 03 February 2014
...D. So; Y. Joly; B.M. Knoppers Background: Data sharing from clinical trials can be key to the development and approval of medicines for rare diseases. Many events during the first half of 2013 have contributed to the movement for increased transparency. These include the development of the European...
Journal Articles