... to persons or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements. Direct-to-consumer genetic testing Ethnic/racial minorities Privacy Public attitudes The direct-to-consumer genetic testing market is quickly expanding...

... ]. Despite these strong motivators, concerns over privacy [5, 8, 9, 13 , 15 ], discrimination [8, 11 , 13 , 16 - 18 ], and anticipated negative emotional responses to test results [5] may hinder participation. As familiarity with genetic testing increases, it is uncertain if historical motivators...

... of secondary uses of data, to understand their perception of risks associated with these uses, and to determine the extent of customer concerns about privacy. Methods: Twenty DTC GT customers were interviewed about their experiences. The semi-structured interviews were transcribed, coded, and analyzed...

... Data protection Data sharing Direct-to-consumer personal genomics Older adults Personalized medicine Privacy Research participation Healthcare systems are in the process of being transformed by the emergence of “omics” technologies [ 1 ]. Genetic testing became one of the cornerstones...

... respondents were more interested in testing compared to females. There was a strong interest in genetic research participation and notably limited privacy concerns. Conclusion: Although 59% of the respondents were interested in DTC genomic testing, they were not likely to be affected by them or act upon them...

... problems and benefits of information distribution in digital networks and biobanks. People identify many challenges associated with collection of personal data in the information society. The study showed that instead of privacy – which has been the key term of bioethical debates on biobanks – the notions...

...’ provides many potential advantages, the sharing of individual data raises important social and ethical concerns. We examine ongoing development of one technology, DataSHIELD, which appears to elide privacy concerns about sharing data by enabling shared analysis while not actually sharing any individual...

... Privacy Public engagement There is considerable support in the academic literature that human tissue repositories, or biobanks, have the potential to be of significant benefit to health research (our own empirical work also suggests that lay publics express strong in principle agreement...

... of privacy, State powers, stakeholder perceptions, and public participation, we propose in this article, for each of these themes, a series of recommendations aiming to provide guidance on the role of the State in the use of genomic information for public health research, prevention and planning. Access...

... and the editor(s) disclaim responsibility for any injury to persons or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements. Biobanks Deliberative democracy Deliberative output Governance Health research Informed consent Privacy Public...