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Keywords: Ethics of genetic research
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Journal Articles

Receiving a Pathogenic Variant in a Population Breast Cancer Screening Trial: A Mixed Method Study

Subject Area:
Genetics , Public Health
Leslie Riddle, Jennifer Elyse James, Arash Naeim, Lisa Madlensky, Susie Brain, Diana DeRosa, Martin Eklund, Allison Stover Fiscalini, Diane Heditsian, Barbara Koenig, Katherine Ross, Leah P. Sabacan, Barry Tong, Neil Wenger, Galen Joseph
Journal: Public Health Genomics
Public Health Genomics (2024) 27 (1): 177–196.
https://doi.org/10.1159/000540680
Published Online: 20 September 2024
... and the editor(s) disclaim responsibility for any injury to persons or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements. 2024 Breast cancer Ethics of genetic research Population-based studies Precision Public Health Genetic...
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Journal Articles

Translational Science, DNA Commercialization, and Informed Consent: The Need for Specific Terminology, Insights from a Review of H3Africa Projects

Subject Area:
Genetics , Public Health
Patricia Marshall, Charmaine D.M. Royal, Ruth Chadwick
Journal: Public Health Genomics
Public Health Genomics (2022) 25 (3-4): 112–119.
https://doi.org/10.1159/000521371
Published Online: 25 January 2022
... for translational research in product development require a transparent commercialization framework to inform the consent process. Ethics of genetic research DNA commercialization Informed consent H3Africa Commercialization Typology Table 5. DNA commercialization typology The vertical columns...
View articletitled, Translational Science, DNA Commercialization, and Informed Consent: The Need for Specific Terminology, Insights from a Review of H3Africa Projects
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Journal Articles

Ethical Aspects of Genotype Disclosure: Perceptions of Participants in a Nutrigenetic Study in Finland

Subject Area:
Topic Article Package: Moksha , Genetics , Public Health
Suchetana De, Maaria Tringham, Anu Hopia, Raija Tahvonen, Anna-Maija Pietilä, Kirsi Vähäkangas
Journal: Public Health Genomics
Public Health Genomics (2021) 24 (1-2): 33–43.
https://doi.org/10.1159/000512640
Published Online: 22 January 2021
... to persons or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements. Ethics of genetic research Close-ended questionnaire Genetic knowledge Participant concerns Adult-onset disorders The ethical issues surrounding disclosure...
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Journal Articles

Research Participants’ Attitudes towards Receiving Information on Genetic Susceptibility to Arsenic Toxicity in Rural Bangladesh

Subject Area:
Genetics , Public Health
Lizeth I. Tamayo, Hannah Lin, Alauddin Ahmed, Hasan Shahriar, Rabiul Hasan, Golam Sarwar, HEM Mahbubul Eunus, Habibul Ahsan, Brandon L. Pierce
Journal: Public Health Genomics
Public Health Genomics (2020) 23 (1-2): 69–76.
https://doi.org/10.1159/000505632
Published Online: 18 February 2020
... Environmental risk factors Ethics of genetic research Return of genetic results © 2020 S. Karger AG, Basel 2020 Copyright / Drug Dosage / Disclaimer Copyright: All rights reserved. No part of this publication may be translated into other languages, reproduced or utilized in any form or by any means...
View articletitled, Research Participants’ Attitudes towards Receiving Information on Genetic Susceptibility to Arsenic Toxicity in Rural Bangladesh
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Journal Articles

Participation in Genetic Research: Amazon's Mechanical Turk Workforce in the United States and India

Subject Area:
Genetics , Public Health
Susan W. Groth, Ann Dozier, Margaret Demment, Dongmei Li, I. Diana Fernandez, Jack Chang, Timothy Dye
Journal: Public Health Genomics
Public Health Genomics (2017) 19 (6): 325–335.
https://doi.org/10.1159/000452094
Published Online: 04 November 2016
..., instructions or products referred to in the content or advertisements. Bioethics Concerns Ethics of genetic research Genetic research Human population Attitudes Beliefs Social representation National Institutes of Health (NIH) 10.13039/100000002 Genetic research has...
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Journal Articles

Stability of Attitudes to the Ethical Issues Raised by the Return of Incidental Genomic Research Findings in Children: A Follow-Up Study

Subject Area:
Genetics , Public Health
Conrad V. Fernandez, Colleen OʼConnell, Meghan Ferguson, Andrew C. Orr, Johane M. Robitaille, Bartha M. Knoppers, Christopher R. McMaster
Journal: Public Health Genomics
Public Health Genomics (2015) 18 (5): 299–308.
https://doi.org/10.1159/000439244
Published Online: 10 September 2015
... remain stable over time. Guidelines on the return of results should incorporate these findings. Children Ethics of genetic research Genomics [email protected] 12 03 2015 7 08 2015 10 9 2015 © 2015 S. Karger AG, Basel 2015 Copyright / Drug Dosage...
View articletitled, Stability of Attitudes to the Ethical Issues Raised by the Return of Incidental Genomic Research Findings in Children: A Follow-Up Study
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Journal Articles

Playing a Part in Research? University Students' Attitudes to Direct-To-Consumer Genomics

Subject Area:
Genetics , Public Health
Effy Vayena, Christian Ineichen, Elia Stoupka, Ernst Hafen
Journal: Public Health Genomics
Public Health Genomics (2014) 17 (3): 158–168.
https://doi.org/10.1159/000360257
Published Online: 25 April 2014
... or environment affect health, the majority of the respondents placed it in the middle of 7-point Likert scale (mean = 4.3), representing a mix of both. Direct-to-consumer genomics Ethical aspects Ethics of genetic research Genetic testing policy Genomics Personalized medicine Privacy A number...
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