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Keywords: Ethics
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Journal Articles
Public Health Genomics (2023) 26 (1): 188–193.
Published Online: 17 October 2023
... or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements. 2023 Newborn screening Genomics Ethics Psychosocial issues Newborn screening (NBS) facilitates early detection and treatment of infants with rare, treatable conditions...
Journal Articles
Public Health Genomics (2020) 23 (3-4): 149–154.
Published Online: 09 June 2020
... an ethical analysis of such proposals for “precision rationing” and raise 4 key areas of concern. We argue that ethical issues arising in this area are not substantively different from the pressing ethical issues regarding rationing and discrimination more broadly, but provide important impetus...
Journal Articles
Public Health Genomics (2019) 22 (3-4): 140–144.
Published Online: 24 September 2019
... education, and ethical oversight are achieved, and technical/scientific progress continues. However, there will be considerable associated challenges for healthcare systems and society. Australia has made positive steps by developing a National Genomics Framework and launching disease-specific demonstration...
Journal Articles
Journal Articles
Public Health Genomics (2016) 19 (5): 307–313.
Published Online: 08 September 2016
...Serena Oliveri; Gabriella Pravettoni; Chiara Fioretti; Mats G. Hansson Health-care systems as well as legislators and society seem largely unprepared to face and manage the massive production of genetic risk information. Ethics committees and professional bodies usually do not involve...
Journal Articles
Public Health Genomics (2016) 19 (5): 269–275.
Published Online: 24 August 2016
...Travis Hyams; Deborah J. Bowen; Celeste Condit; Jeremy Grossman; Megan Fitzmaurice; Deborah Goodman; Lari Wenzel; Karen L. Edwards Background: The practice of biorepository-based genetics research raises questions related to what ethical obligations researchers have to their participants...
Journal Articles
Journal Articles
Public Health Genomics (2015) 18 (2): 87–96.
Published Online: 13 December 2014
... a broader range of ethics-related data-sharing concerns. Methods: Ethics-related data-sharing concerns of Institutional Review Boards, ethics experts, international research consortia and research participants were identified through a literature search and systematically examined at a multidisciplinary...
Journal Articles
Public Health Genomics (2014) 17 (3): 149–157.
Published Online: 28 March 2014
... environment of the contributing study; participating studies have scientific, ethics, and data access approvals in place prior to the analysis; studies are clear that their consents conform with this use of data, and participants are informed that anonymisation for further disclosure will take place...
Journal Articles
Public Health Genomics (2014) 16 (6): 288–298.
Published Online: 03 February 2014
... to persons or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements. Communication Ethics Governance Needs Networking Quality Rare diseases Registries Survey Sustainability A recent report [ 1 ] lists about 600 rare disease...
Journal Articles
Public Health Genomics (2013) 16 (4): 135–144.
Published Online: 09 May 2013
... or of their effectiveness, quality or safety. The publisher and the editor(s) disclaim responsibility for any injury to persons or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements. Epigenetics Epigenomics Equity Ethics Public health Social justice...
Journal Articles
Journal Articles
Public Health Genomics (2011) 14 (3): 173–177.
Published Online: 18 December 2010
... to in the content or advertisements. Communication Ethics False positive Newborn screening Stress Newborn screening programs for metabolic and endocrine disorders have recently expanded. Tennessee, like many states, routinely screens for over 40 conditions. This expansion of screening has lead...
Journal Articles
Public Health Genomics (2011) 14 (3): 135–142.
Published Online: 08 October 2010
...(s) disclaim responsibility for any injury to persons or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements. Biorepositories Community consultation Ethics Genetic research Group harm Human subjects Informed consent Stored...
Journal Articles
Public Health Genomics (2010) 13 (7-8): 431–439.
Published Online: 09 September 2010
...N. Arar; J. Seo; S. Lee; H.E. Abboud; L.A. Copeland; P. Noel; M. Parchman Objective: Communicating genetic research results to participants presents ethical challenges. Our objectives were to examine participants’ preferences in receiving future genetic research results and to compare preferences...
Journal Articles
Public Health Genomics (2010) 13 (4): 207–214.
Published Online: 15 April 2010
...E.M. Meslin With the domestic and international proliferation of biobanks and their associated connections to health information databases, scholarly attention has been turning from the ethical issues arising from the construction of biobanks to the ethical issues that emerge in their operation...
Journal Articles
Public Health Genomics (2011) 14 (2): 68–76.
Published Online: 10 April 2010
...K. Hens; H. Nys; J.-J. Cassiman; K. Dierickx Genetic research on pediatric stored tissue samples raises specific ethical questions that differ from those raised when adults are the donors. To investigate opinions on this matter, we conducted 10 focus group discussions. Five focus groups were...
Journal Articles
Public Health Genomics (2010) 13 (6): 368–377.
Published Online: 15 January 2010
... sharing Ethics Focus groups Genetic research Genome-wide association studies Policy Public attitudes Qualitative research Research participation National Institutes of Health (NIH) 10.13039/100000002 In parallel with the emergence of new technologies such as genome-wide...