.... Tercyak Introduction: Despite guidelines discouraging pediatric genetic testing for adult-onset hereditary cancer risk, direct-to-consumer (DTC) companies make them available to children’s parents. This study examined the perspectives of high-risk parents toward such testing. Methods: Interviews were...

... or of their effectiveness, quality or safety. The publisher and the editor(s) disclaim responsibility for any injury to persons or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements. Biospecimen Biobanking Mental health Children Research participation...

... questionnaire was mailed to participants in a large genome research consortium 18 months following a baseline survey. We describe the stability of parental attitudes to (a) sharing of genomic research results, (b) endorsement of children in genomic research, (c) responsibilities of researchers, and (d...

...Daniel S. Dodson; Aaron J. Goldenberg; Matthew M. Davis; Dianne C. Singer; Beth A. Tarini Objective: The aim of this study was to assess the baseline interest of the public in whole-genome sequencing (WGS) for oneself, parents' interest in WGS for their youngest children, and factors associated...

...E.M. Ngui; T.D. Warner; L.W. Roberts Background: As genetic research gains more prominence in society, ethical concerns and the need for safeguards in the participation of children and pregnant women have increased. This study examined the perspectives of African-American health professional...

... and chromosomal disorders on hospital admissions of children and adolescents. Methods: Hospital admissions for patients aged 0–19 years between 2000 and 2006, with a single gene or chromosomal disorder, were extracted from the Western Australian Hospital Morbidity Data System using 296 diagnosis codes identified...

...S. van der Pal; B. Sozanska; D. Madden; A. Kosmeda; A. Debinska; H. Danielewicz; A. Boznanski; S. Detmar Aims: The objective was to evaluate children’s opinions about their participation in a large research project. Methods: Polish children between 6 and 14 years of age completed a questionnaire...