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Keywords: Broad consent
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Journal Articles
Karen M. Meagher, Susan H. Curtis, Kylie O. Gamm, Erica J. Sutton, Jennifer B. McCormick, Richard R. Sharp
Journal:
Public Health Genomics
Public Health Genomics (2020) 23 (3-4): 77–89.
Published Online: 12 May 2020
... contributors at the time of sample distribution provides one form of communication to supplement broad consent. However, little is known about how community-informed governance might anticipate contributor responses and inform communication efforts. Objective: We explored the attitudes of members of a three...
Journal Articles
Journal:
Public Health Genomics
Public Health Genomics (2016) 19 (4): 220–228.
Published Online: 05 July 2016
..., and in an era of patient-centered research, few studies have evaluated participants' preferences about re-consent and broad consent. Using quantitative methods, this study evaluates participants' views regarding the acceptability of re-consent and broad consent in subjects from the Participant Issues Project...
Journal Articles
Journal:
Public Health Genomics
Public Health Genomics (2012) 15 (5): 263–271.
Published Online: 20 June 2012
... to an already determined use of their samples and data or can consent to a general use for research. In this article, we discuss the validity of broad consent and in how far the arising deficits in data protection need to be and can be compensated. Broad consent is, in our opinion, generally legally valid...