...Eric J. Vallender; Mark E. Ladner; Margaret O. Akinhanmi; Felicia V. Caples; Mark A. Frye; Joyce E. Balls-Berry Aims: The goal of this project was to better understand the motivating and discouraging factors toward genetic research and biobank programs in patients with bipolar disorder...

... responsibility for any injury to persons or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements. Informed consent Opt-out Biobank Residual tissue Recall Tissues excised as part of a diagnostic procedure or during treatment...

... Boards [ 10 ]. Biorepository Genetics Qualitative focus Precision medicine Biobank Cancer Return of results Ethics The source of participants for this study and the methods for data collection have been described previously [ 19 ]. Briefly, 30 participants were drawn from...

... (Blood for Health; SPS) Biobank was created for the purpose of expanding precision medicine research to include underrepresented Latino patients. It is the result of a unique collaboration between Mayo Clinic and Mountain Park Health Center, a federally qualified community health center in Phoenix...

... or advertisements. Biobank Information Newborn screening policy Parental autonomy Participatory governance Public opinion Research ethics Research on minors Stored samples Informed consent Neonatal screening of dried blood spots (DBS) is common worldwide, as is DBS storage for variable...

... to in the content or advertisements. Biobank Data sharing DataSHIELD Epidemiological research Ethics IRB review Statistical analysis Vast amounts of data are needed to study the causes of disease and elucidate interactions between genes and environment [ 1 ]. Building enriched datasets typically...

...Daniel B. Thiel; Jodyn Platt; Tevah Platt; Susan B. King; Nicole Fisher; Robert Shelton; Sharon L.R. Kardia Background: Michigan's BioTrust for Health, a public health research biobank comprised of residual dried bloodspot (DBS) cards from newborn screening contains over 4 million samples collected...

...Susan E. Wallace; Amadou Gaye; Osama Shoush; Paul R. Burton Background: Data from individual collections, such as biobanks and cohort studies, are now being shared in order to create combined datasets which can be queried to ask complex scientific questions. But this sharing must be done with due...

...A. Haukkala; E. Kujala; P. Alha; V. Salomaa; S. Koskinen; H. Swan; H. Kääriäinen Background: In this study, we examined how biobank study participants, who were found to have long QT syndrome (LQTS), a potentially life-threatening but treatable cardiac arrhythmia condition, experienced the process...

...J.E. Platt; T. Platt; D. Thiel; S.L.R. Kardia Background/Aims: Despite a broad call for biobanks to use social media, data is lacking regarding the capacity of social media tools, especially advertising, to engage large populations on this topic. Methods: We used Facebook advertising to engage...

...J.L. Ridgeway; L.C. Han; J.E. Olson; K.A. Lackore; B.A. Koenig; T.J. Beebe; J.Y. Ziegenfuss Background: Biobanks are an important resource for genetic and epidemiologic research, but bias may be introduced if those who accept the recruitment invitation differ systematically from those who do...

...J. Taupitz; J. Weigel In order to follow population-based approaches for certain causes and risks of illnesses, more and more biobanks have been set up during the last years. Here, samples and personal data of the donors are collected and saved, whereby concrete research aims, at the time...

...A. Bialobrzeski; J. Ried; P. Dabrock The notions ‘common good’ and ‘public good’ are mostly used as synonyms in bioethical discussion of biobanks, but have different origins. As a consequence, they should be applied differently. In this article, the respective characteristics are worked out...

...A. Hobbs; J. Starkbaum; U. Gottweis; H.E. Wichmann; H. Gottweis In recent years, the adequacy of the ‘gift’ model of research participation has been increasingly questioned. This study used focus groups to explore how potential and actual participants of biobanks in the UK and Germany negotiate...

... and the editor(s) disclaim responsibility for any injury to persons or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements. Biobank Informed consent Michigan BioTrust for Health Newborn screening Residual dried blood spots For more...

... be translated to policy. This paper describes the processes we undertook to design a deliberative public forum for citizens to develop recommendations on biobanking that were adopted as health policy. Method: The 4-day forum, held in 2008 in Perth, Western Australia, was designed in collaboration with academic...

... be the best persons to make decisions on behalf of a small child and that the same parents would engage their children in the decision-making when they grew older. People thought that there was a duty to recontact minors when they reached the age of competence but on a best-effort basis. Biobank Ethics...

... or safety. The publisher and the editor(s) disclaim responsibility for any injury to persons or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements. Biobank Biorepository Data sharing Ethics Focus groups Genetic research Genome-wide...