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Issues

Volume 16, Issue 6
February 2014
Issue Cover
All Issues
ISSN 1662-4246
EISSN 1662-8063
In this Issue

Journal Name Change

Published until Vol. 11 (2008) as: Community Genetics.

Public Health Genomics 2013, Vol. 16, No. 6

 

Title Page / Table of Contents
Subject Area: Genetics , Public Health
Public Health Genomics (2014) 16 (6): 255–256. https://doi.org/10.1159/000357286
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Editorial

Editorial
Subject Area: Genetics , Public Health
D. Taruscio
Public Health Genomics (2014) 16 (6): 257–258. https://doi.org/10.1159/000355926
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New and Evolving Rare Diseases Research Programs at the National Institutes of Health
Subject Area: Genetics , Public Health
S.C. Groft; Y.R. Rubinstein
Public Health Genomics (2014) 16 (6): 259–267. https://doi.org/10.1159/000355929
View articletitled, New and Evolving Rare Diseases Research Programs at the National Institutes of Health
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The European Union Policy in the Field of Rare Diseases
Subject Area: Genetics , Public Health
A. Montserrat Moliner; J. Waligóra
Public Health Genomics (2014) 16 (6): 268–277. https://doi.org/10.1159/000355930
View articletitled, The European Union Policy in the Field of Rare Diseases
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EUROPLAN: A Project to Support the Development of National Plans on Rare Diseases in Europe
Subject Area: Genetics , Public Health
D. Taruscio; A.E. Gentile; M. De Santis; R.M. Ferrelli; M. Posada de la Paz; M. Hens; J. Huizer; L. Fregonese; R. Stefanov; V. Bottarelli; A. Weinman; Y. Le Cam; D. Gavhed; P. Mincarone; K. Bushby; R.G. Frazzica; C. Donati; L. Vittozzi; E. Jessop
Public Health Genomics (2014) 16 (6): 278–287. https://doi.org/10.1159/000355932
View articletitled, EUROPLAN: A Project to Support the Development of National Plans on Rare Diseases in Europe
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The Current Situation and Needs of Rare Disease Registries in Europe
Subject Area: Genetics , Public Health
D. Taruscio; S. Gainotti; E. Mollo; L. Vittozzi; F. Bianchi; M. Ensini; M. Posada
Public Health Genomics (2014) 16 (6): 288–298. https://doi.org/10.1159/000355934
View articletitled, The Current Situation and Needs of Rare Disease Registries in Europe
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A Model for the European Platform for Rare Disease Registries
Subject Area: Genetics , Public Health
L. Vittozzi; S. Gainotti; E. Mollo; C. Donati; D. Taruscio
Public Health Genomics (2014) 16 (6): 299–304. https://doi.org/10.1159/000355935
View articletitled, A Model for the European Platform for Rare Disease Registries
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EU Pancreas: An Integrated European Platform for Pancreas Cancer Research - from Basic Science to Clinical and Public Health Interventions for a Rare Disease
Subject Area: Genetics , Public Health
R. Milne; C. La Vecchia; K. Van Steen; S. Hahn; M. Buchholz; E. Costello; I. Esposito; J.D. Hoheisel; B. Lange; N. Lopez-Bigas; C.W. Michalski; F.X. Real; A. Brand; N. Malats; on behalf of the COST Action BM1204 participants
Public Health Genomics (2014) 16 (6): 305–312. https://doi.org/10.1159/000355937
View articletitled, EU Pancreas: An Integrated European Platform for Pancreas Cancer Research - from Basic Science to Clinical and Public Health Interventions for a Rare Disease
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Biomarkers in Rare Diseases
Subject Area: Genetics , Public Health
A. Ferlini; C. Scotton; G. Novelli
Public Health Genomics (2014) 16 (6): 313–321. https://doi.org/10.1159/000355938
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Clinical Trial Transparency and Orphan Drug Development: Recent Trends in Data Sharing by the Pharmaceutical Industry
Subject Area: Genetics , Public Health
D. So; Y. Joly; B.M. Knoppers
Public Health Genomics (2014) 16 (6): 322–335. https://doi.org/10.1159/000355941
View articletitled, Clinical Trial Transparency and Orphan Drug Development: Recent Trends in Data Sharing by the Pharmaceutical Industry
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Author Index Vol. 16, No. 6, 2013
Subject Area: Genetics , Public Health
Public Health Genomics (2014) 16 (6): 336. https://doi.org/10.1159/000357285
View articletitled, Author Index Vol. 16, No. 6, 2013
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Subject Index Vol. 16, No. 6, 2013
Subject Area: Genetics , Public Health
Public Health Genomics (2014) 16 (6): 337. https://doi.org/10.1159/000357287
View articletitled, Subject Index Vol. 16, No. 6, 2013
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Contents Vol. 16, 2013
Subject Area: Genetics , Public Health
Public Health Genomics (2014) 16 (6): I–IV. https://doi.org/10.1159/000357288
View articletitled, Contents Vol. 16, 2013
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Streamlined Genetic Education and Cascade Testing in Men from Hereditary Breast Ovarian Cancer Families: A Randomized Trial
Development, Evaluation, and User Testing of a Decision-Making Toolkit to Promote Organizations to Implement Universal Tumor Screening for Lynch Syndrome
Sociodemographic and Clinical Characteristics Associated with Genetic Testing among Cancer Survivors: Evidence from Three Cancer Registries
Bridging the Gap between Intuition and Theory: A Comparison of Different Approaches to Implementation Strategy Development for Improving Lynch Syndrome Detection
  • Online ISSN 1662-8063
  • Print ISSN 1662-4246
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