Public health genomics (PHG) relies on developing knowledge from a variety of natural and social science research disciplines to shape public policies, health policy, education and training, and direct outreach to organisations and the population at large. All of these components rely on the involvement of stakeholders who, because of the diverse groups involved, will have a wide range of backgrounds. The significant challenges associated with the engagement of such a diverse range of stakeholders are compounded by the wide knowledge gaps that exist between scientists, the public, and different professional groups. In this paper we discuss some of the areas of public policy that might involve PHG, set out principles on the need for stakeholder involvement, and describe the range of potential stakeholders that need to be considered when working to incorporate PHG into new and existing policies. For specific projects in PHG, however, the question of who to involve and how must be addressed according to the work in question.

Burke W, Khoury M, Stewart A, Zimmern RL; Bellagio Group: The path from genome-based research to population health: development of an international public health genomics network. Genet Med 2006;8:451–458.
Stewart A, Brice P, Burton H, Pharoah P, Sanderson S, Zimmern R: Genetics, Health Care and Public Policy: An Introduction to Public Health Genetics. Cambridge, Cambridge University Press, 2007.
WHO (1986): Ottawa Charter for Health Promotion. Geneva, WHO, 1986.
Bennett P, Smith SJ: Genetics, insurance and participation: how a Citizen’s Jury reached its verdict. Soc Sci Med 2007;64:2487–2498.
National Genetics Education and Development Centre and Skills for Health. Competences for Genetics in Clinical Practice for Non-Genetics Healthcare Staff.
Stemmerding D, Swierstra T: How might scenario studies help us to think about the normative implications of genomics and preventative medicine? in de Bouvet A, Boitte P, Aiguier G (eds): Questions éthiques en médecine prédictive. Paris, John Libby Eurotext, 2006, pp 81–88.
Arnstein S: A ladder of citizen participation in the USA. J Am Inst Plann 1969;35:216–224.
Fraser N: Transnational public sphere: Transnationalizing the public sphere: On the legitimacy and efficacy of public opinion in a post-Westphalian world. Theor Cult Soc 2007;24:7–30.
Rotimi C, Leppert M, Matsuda I, Zeng C, Zhang H, Adebamowo C, Ajayi I, Aniagwu T, Dixon M, Fukushima Y, Macer D, Marshall P, Nkwodimmah C, Peiffer A, Royal C, Suda E, Zhao H, Wang VO, McEwen J: International HapMap Consortium. Community engagement and informed consent in the International HapMap project. Community Genet 2007;10:186–198.
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