Abstract
Background: Psychosocial support for adult cancer patients and their families is still very limited. The possible role of a structured group support program for cancer patients and their relatives, the preferred topics, the relevance of anonymity, and the acceptance in general of this type of support was investigated. Material Methods: The objectives of the active living with cancer (ALC) program are current accurate information given by health care professionals communication. Information sharing is the motto of the ALC. It has been realized 5 times at the University of Würzburg. 99 persons (68 patients 31 relatives or friends) participated. 70% of the patients had solid tumors 21% malignant lymphoma 9% leukemia. The patients’ average age was 50 years (18-74 years). The objectives of the study were investigated by questionnaires distributed to the participants. Results: The overall acceptance of the ALC program was high. 96% of the participants rated the information discussion on medical psychological topics 84% on nutritional topics 82% on physical relaxation techniques as very important or important. One third requested more meetings for additional support for psychological (fear of relapse death) medical problems (‘alternative’ treatments). Anonymity was considered to be positive helped creating a climate of understanding by sharing common needs experiences. Different types of cancer heterogeneous age as well as the participation of patients relatives/friends enhanced discussions learning. Conclusions: The ACL program could represent a possible model for psychosocial support for adult cancer patients their families.