Among preterm infants, 1-2% are born before 32 weeks of gestation or have a birth weight below 1,500 g. They contribute disproportionately to the burden of mortality and morbidity related to preterm birth, whether in the neonatal period or later in life. They are the target population studied in neonatal networks. Improving neonatal care and later outcome is a major issue in public health. Neonatologists, health care providers, public authorities, parents and families, industry, and all organizations dedicated to infant health must bring their efforts together and dedicate their actions in order to do so. Neonatal networks are the strongest platforms through which to achieve this goal. The progressive information technology (IT) revolution is leading to a new approach. The power of search engines and new technological devices opens extraordinary new perspectives in terms of speed, storing, sharing, and innovative approaches in providing health care. However, difficulties are expected with old applications that cannot evolve in the new IT environment. Security and privacy in data collection are future challenges to be addressed. Here, we describe the eNewborn project and its original software. The main functionalities are interactive navigation, harmonization with other formats, linkage with other databases, and strict security and privacy procedures.

1.
Payeur FF: Un portrait de la mortalité selon l'âge au Québec. Données sociodémographiques en bref 2011;16:1-5.
2.
Harrison MS, Goldenberg RL: Global burden of prematurity. Semin Fetal Neonatal Med 2016;21:74-79.
3.
Horbar JD, Carpenter JH, Badger GJ, Kenny MJ, Soll RF, Morrow KA, Buzas JS: Mortality and neonatal morbidity among infants 501 to 1500 grams from 2000 to 2009. Pediatrics 2012;129:1019-1026.
4.
Marlow N, Hennessy E, Bracewell MA, Wolke D; EPICure Study Group: Motor and executive function at 6 years of age after extremely preterm birth. Pediatrics 2007;120:793-804.
5.
Ronkainen E, Dunder T, Peltoniemi O, Kaukola T, Marttila R, Hallman M: New BPD predicts lung function at school age: follow-up study and meta-analysis. Pediatr Pulmonol 2015;50:1090-1098.
6.
Hanson M: The birth and future health of DOHaD. J Dev Orig Health Dis 2015;6:434-437.
7.
Gilman MW, Barker D, Bier D, Cagampang F, Challis J, Fall C, Godfrey K, Gluckman P, Hanson M, Kuh D, Nathanielsz P, Nestel P, Thornburg KL: Meeting report on the 3rd International Congress on Developmental Origins of Health and Disease (DOHaD). Pediatr Res 2007;61:625-629
8.
Thomson W: Electrical Units of Measurement; in Popular Lectures and Addresses. London, Macmillan, 1889, vol 1, p 73.
9.
Deming WE: Opportunities in mathematical statistics with special reference to sampling and quality control. Science 1943;97:209-214.
10.
Lynn ML, Osborn DP: Deming's quality principles: a health care application. Hosp Health Serv Adm 1991;36:111-120.
11.
Stoll BJ, Hansen NI, Bell EF, Shankaran S, Laptook AR, Walsh MC, Hale EC, et al; Eunice Kennedy Shriver National Institute of Child Health and Human Development Neonatal Research Network: Neonatal outcomes of extremely preterm infants from the NICHD neonatal research network. Pediatrics 2010;126:443-456.
12.
Shah V, Warre R, Lee SK: Quality improvement initiatives in neonatal intensive care unit networks: achievements and challenges. Acad Pediatr 2013;13(6 suppl):S75-S83.
13.
Shah PS, Lee SK, Lui K, Sjörs G, Mori R, Reichman B, Håkansson S, et al; International Network for Evaluating Outcomes of Neonates (iNeo): The International Network for Evaluating Outcomes of very preterm neonates (iNeo): a protocol for collaborative comparisons of international health services for quality improvement in neonatal care. BMC Pediatr 2014;14:110.
14.
Valls-i-Soler A, Carnielli V, Claris O, de la Cruz Bértolo J, Halliday HL, Hallman M, Hummler H, Weindling M: EuroNeoStat: a European information system on the outcomes of care for very-low-birth-weight infants. Neonatology 2008;93:7-9.
15.
Lachman P, Jayadev A, Rahi M: The case for quality improvement in the neonatal intensive care unit. Early Hum Devel 2014;90:719-723.
16.
Haumont D: Environment and early developmental; in Buonocore G, Bracci R, Weindling M (eds): Neonatology: A Practical Approach to Neonatal Management. Milan, Springer, 2012, pp 197-200.
17.
Statnikov Y, Ibrahim B, Modi N: A systematic review of administrative and clinical databases of infants admitted to neonatal units. Arch Dis Child Fetal Neonatal Ed 2017, Epub ahead of print.
18.
Zeitlin J, Mohangoo AD, Delnord M, Cuttini M; EURO-PERISTAT Scientific Committee: The second European Perinatal Health Report: documenting changes over 6 years in the health of mothers and babies in Europe. J Epidemiol Community Health 2013;67:983-985.
19.
Gale C, Morris I; Neonatal Analysis Unit (NDAU) Steering Board: The UK National Neonatal Research Database: using neonatal data for research, quality improvement and more. Arch Dis Child Educ Pract Ed 2016;101:216-218.
20.
Battersby C, Longford N, Mandalia S, Costeloe K, Modi N: Incidence and enteral feed antecedents of severe neonatal necrotising enterocolitis across neonatal networks in England, 2012-13: a whole-population surveillance study. Lancet Gastroenterol Hepatol 2016;2:43-51.
21.
Battersby C, Longford N, Costeloe K, Modi N: Development of a gestational age-specific case definition for neonatal necrotizing enterocolitis. JAMA Pediatr 2017;171:256-263.
22.
Costeloe K, Hardy P, Juszczak E, Wilks M, Millar MR; Probiotics in Preterm Infants Study Collaborative Group: Bifidobacterium breve BBG-001 in very preterm infants: a randomised controlled phase 3 trial. Lancet 2016;387:649-660.
23.
Creel LM, Gregory S, McNeal CJ, Beeram MR, Krauss DR: Multicenter neonatal databases: trends in research uses. BMC Res Notes 2017;10:42.
24.
Conroy S, McIntyre J: The use of unlicensed and off-label medicines in the neonate. Semin Fetal Neonatal Med 2005;10:115-122.
25.
McCune SK, Mulugeta YA: Regulatory science needs for neonates: a call for neonatal community collaboration and innovation. Front Pediatr 2014;2:135.
26.
Davis JM, Smoyer WE, Connor EM, Huskins WC, Pastern C, Purucker M, Schrader EC, Jackson CR, Kaskel FJ, Hirschfeld S: Sponsors meet scientists to speed pediatric medicines development. Sci Transl Med 2015;18;7:279fs11.
27.
Turner MA, Davis JM, McCune S, Bax R, Portman RJ, Hudson LD: The International Neonatal Consortium: collaborating to advance regulatory science for neonates. Pediatr Res 2016;80:462-464.
28.
Gaye A, Marcon Y, Isaeva J, LaFlamme P, Turner A, Jones EM, Minion J, et al: DataSHIELD: taking the analysis to the data, not the data to the analysis. Int J Epidemiol 2014;43:1929-1944.
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