Objective: To gain an insight into speech and language therapists' perspectives on and practices in quality of life in aphasia. Participants and Methods: The International Association of Logopedics and Phoniatrics Aphasia Committee developed a survey questionnaire, which was delivered online, anonymously, through SurveyMonkey (November 2012 to April 2013) to clinicians working with people with aphasia in 16 countries across the world. Results: A large number of speech and language therapists responded to the survey, with 19/21 questions answered by 385-579 participants. Clinicians were well informed on what constitutes quality of life and viewed it as a complex construct influenced by health, participation, in/dependence, communication, personal factors, and environmental factors. In their clinical practice, they considered quality of life as important, used informal approaches to explore it and aimed to address quality of life goals; yet, the majority did not evaluate quality of life in a systematic way. Conclusion: There is a need for training on quality of life to help speech and language therapists incorporate quality of life outcome measures in their interventions. There is also a need for further research on which interventions improve quality of life in aphasia.

Dickey L, Kagan A, Lindsay MP, Fang J, Rowland A, Black S: Incidence and profile of inpatient stroke-induced aphasia in Ontario, Canada. Arch Phys Med Rehabil 2010;91:196-202.
Wade DT: Stroke (acute cerebrovascular disease); in Stevens A, Raftery J (eds): Health Care Needs Assessment. Oxford, Radcliffe Medical Press, 1994, pp 111-255.
Hilari K, Needle JJ, Harrison KL: What are the important factors in health-related quality of life for people with aphasia? A systematic review. Arch Phys Med Rehabil 2012;93:S86-S95.
Kauhanen ML, Korpelainen JT, Hiltunen P, et al: Aphasia, depression, and non-verbal cognitive impairment ischaemic stroke. Cerebrovasc Dis 2000;10:455-461.
Cruice M, Worrall L, Hickson L: Quantifying aphasic people's social lives in the context of non-aphasic peers. Aphasiology 2006;20:1210-1225.
Dalemans RJP, de Witte L, Wade D, van den Heuvel W: Social participation through the eyes of people with aphasia. Int J Lang Commun Disord 2010;45:537-550.
Davidson B, Howe T, Worrall L, Hickson L, Togher L: Social participation for older people with aphasia: the impact of communication disability on friendships. Top Stroke Rehabil 2008;15:325-340.
Northcott S, Hilari K: Why do people lose their friends after a stroke? Int J Lang Commun Disord 2011;46:524-534.
Parr S: Living with severe aphasia: tracking social exclusion. Aphasiology 2007;21:98-123.
Vickers C: Social networks after the onset of aphasia: the impact of aphasia group attendance. Aphasiology 2010;24:902-913.
Ferro JM, Caeiro L, Santos C: Poststroke emotional and behavior impairment: a narrative review. Cerebrovasc Dis 2009;27(suppl 1):197-203.
Hackett ML, Anderson CS, House A, Xia J: Interventions for treating depression after stroke. Cochrane Database Syst Rev 2008;4:CD003437.
Pinquart M, Sorensen S: Influences of socioeconomic status, social network, and competence on subjective wellbeing in later life: a meta-analysis. Psychol Aging 2000;15:187-224.
Giles LC, Glonek GFV, Luszcz MA, Andrews GR: Effect of social networks on 10 year survival in very old Australians: the Australian longitudinal study of aging. J Epidemiol Commun Health 2005;59:574-579.
Rose M, Ferguson A, Power E, Togher L, Worrall L: Aphasia rehabilitation in Australia: current practices, challenges and future directions. Int J Speech Lang Pathol 2014;16:169-180.
Simmons-Mackie N, Threats T, Kagan A: Outcome assessment in aphasia: a survey. J Commun Disord 2005;38:1-27.
Simmons-Mackie N, Raymer A, Armstrong E, Holland A, Cherney L: Communication partner training in aphasia: a systematic review. Arch Phys Med Rehabil 2010;91:1814-1837.
Brady M, Kelly H, Godwin J, Enderby P: Speech and language therapy for aphasia following stroke. Cochrane Database Syst Rev 2012;5:CD000425.
Graneheim UH, Lundman B: Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today 2004;24:105-112.
WHOQOL Group: The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med 1995;41:1403-1409.
Berzon R, Hays RD, Shumaker SA: International use, application and performance of health-related quality of life instruments. Qual Life Res 1993;2:367-368.
Fuhrer MJ: Subjective well-being: implications for medical rehabilitation outcomes and models of disablement. Am J Phys Med Rehabil 1994;73:358-364.
Bradburn NM: The Structure of Psychological Well-Being. Chicago, Aldine, 1969.
Hilari K, Byng S, Lamping DL, Smith SC: Stroke and Aphasia Quality of Life Scale-39 (SAQOL-39): evaluation of acceptability, reliability and validity. Stroke 2003;34:1944-1950.
Hilari K, Lamping DL, Smith SC, Northcott S, Lamb A, Marshall J: Psychometric properties of the Stroke and Aphasia Quality of Life Scale (SAQOL-39) in a generic stroke population. Clin Rehabil 2009;23:544-557.
Enderby P: Therapy Outcome Measures for Rehabilitation Professionals. Oxford, Wiley-Blackwell, 2006.
Brumfitt S, Sheeran P: Visual Analogue Self-Esteem Scale. Milton Keynes, Speechmark, 2010.
Swinburn K, Byng S: The Communication Disability Profile. London, Connect - The Communication Disability Network, 2006.
Paul DR, Frattali CM, Holland AL, Thompson CK, Caperton CJ, Slater SC: ASHA Quality of Communication Life Scale (QCL). Rockville, American Speech-Language-Hearing Association, 2003.
Kagan A, Simmons-Mackie N, Rowland A, Huijbregts M, Shumway E, McEwen S, et al: Counting what counts: a framework for capturing real life outcomes of aphasia intervention. Aphasiology 2008;22:258-280.
Kagan A, Simmons-Mackie N, Rowland A, Huijbregts M, Shumway E, McEwen S, Dickey L: Assessment for Living with Aphasia. Toronto, Aphasia Institute, 2010.
Lomas J, Pickard L, Bester S, Elbard H, Finlayson A, Zoghaib C: The Communicative Effectiveness Index. Development and psychometric evaluation of a functional communication measure for adult aphasia. J Speech Hear Disord 1989;54:113-124.
Worrall L, Sherratt S, Rogers P, Howe T, Hersh D, Ferguson A, Davidson B: What people with aphasia want: their goals according to the ICF. Aphasiology 2011;25:309-322.
American Speech-Language-Hearing Association: Scope of Practice. 2007. www.asha.org/policy.
Intercollegiate Stroke Working Party: National Clinical Guideline for Stroke, ed 4. London, Royal College of Physicians, 2012.
Brown K, Worrall LE, Davidson B, Howe T: Living successfully with aphasia: a qualitative meta-analysis of the perspectives of individuals with aphasia, family members, and speech-language pathologists. Int J Speech Lang Pathol 2012;14:141-155.
The EuroQol Group: EuroQol - a new facility for the measurement of health-related quality of life. Health Policy 1990;16:199-208.
Nouwens F, Dippel DW, de Jong-Hagelstein M, Visch-Brink EG, Koudstaal PJ, de Lau LM: Rotterdam Aphasia Therapy Study (RATS)-3: the efficacy of intensive cognitive-linguistic therapy in the acute stage of aphasia: design of a randomised controlled trial. Trials 2013;14:24.
Baumgaertner A, Grewe T, Ziegler W, Floel A, Springer L, Martus P, Breitenstein C: FCET2EC (From controlled experimental trial to = 2 everyday communication): how effective is intensive integrative therapy for stroke-induced chronic aphasia under routine clinical conditions? A study protocol for a randomized controlled trial. Trials 2013;14:308.
Godecke E, Ciccone NA, Granger AS, Rai T, West D, Cream A, et al: A comparison of aphasia therapy outcomes before and after a Very Early Rehabilitation programme following stroke. Int J Lang Commun Disord 2014;49:149-161.
Bronken BA, Kirkevold M, Martinsen R, Wyller TB, Kvigne K: Psychosocial well-being in persons with aphasia participating in a nursing intervention after stroke. Nurs Res Pract 2012;2012:568242.
Thomas S, Walker M, Macniven J, Haworth H, Lincoln N: Communication and Low Mood (CALM): a randomized controlled trial of behavioural therapy for stroke patients with aphasia. Clin Rehabil 2013;27:398-408.
Copyright / Drug Dosage / Disclaimer
Copyright: All rights reserved. No part of this publication may be translated into other languages, reproduced or utilized in any form or by any means, electronic or mechanical, including photocopying, recording, microcopying, or by any information storage and retrieval system, without permission in writing from the publisher.
Drug Dosage: The authors and the publisher have exerted every effort to ensure that drug selection and dosage set forth in this text are in accord with current recommendations and practice at the time of publication. However, in view of ongoing research, changes in government regulations, and the constant flow of information relating to drug therapy and drug reactions, the reader is urged to check the package insert for each drug for any changes in indications and dosage and for added warnings and precautions. This is particularly important when the recommended agent is a new and/or infrequently employed drug.
Disclaimer: The statements, opinions and data contained in this publication are solely those of the individual authors and contributors and not of the publishers and the editor(s). The appearance of advertisements or/and product references in the publication is not a warranty, endorsement, or approval of the products or services advertised or of their effectiveness, quality or safety. The publisher and the editor(s) disclaim responsibility for any injury to persons or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements.
You do not currently have access to this content.