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Keywords: Ethics
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Journal Articles
Community Genetics (2008) 11 (3): 135–140.
Published Online: 26 March 2008
... of the presentation was adapted from information developed by the Alpha-1 Foundation [ 37 ]. The presentation included information about inheritance, the complexity of genetic information, gene-environment interaction, test limitations, risks and benefits, treatment options, ethics, involvement of blood relatives...
Journal Articles
Journal Articles
Community Genetics (2005) 8 (2): 94–102.
Published Online: 26 May 2005
... Genetic information Confidentiality Disclosure Family Children Public policy Parental autonomy Ethics Many professional organizations involved in pediatrics and genetics have written consensus statements regarding the issues surrounding genetic testing of children [ 1,2,3,4,5 ] Although...
Journal Articles
Community Genetics (2004) 6 (3): 178–181.
Published Online: 23 June 2004
... a benefit-sharing protocol that will assess individual genetic studies on a case by case basis has been proposed. The province is moving toward legislation to establish a Provincial Health Research Ethics Board (PHREB) that will ensure that all human health research conducted in the province receives local...
Journal Articles
Community Genetics (2003) 6 (1): 46–57.
Published Online: 10 April 2003
... with a web presence that were offering adult genetic susceptibility testing, of which 3 offered direct-to-consumer access. In this paper, Canada – with its educated population and universal health care system – will serve as a case study for illustrating the social, ethical and policy issues (e.g...
Journal Articles
Community Genetics (2002) 4 (4): 204–214.
Published Online: 28 June 2002
...Claus Møldrup Objective: My aim was to examine the ethical, social and legal implications of pharmacogenomics. Method: I performed a critical review of the literature. The primary focal point is the bioethical principle discussed. The second outcome measure is the perspective of the discussion...
Journal Articles
Community Genetics (2001) 3 (4): 204–211.
Published Online: 07 May 2001
... prevention, and (5) provide the data necessary for evidence-based decision-making, serious scientific and social questions remain. Whether samples are identified, coded, or anonymous, biological banking raises profound ethical and legal issues pertaining to access, informed consent, privacy...
Journal Articles
Community Genetics (2001) 3 (4): 198–203.
Published Online: 07 May 2001
...) and of high-throughput SNP scoring technologies. It is important that this application of genetic technology is clearly differentiated from genetic tests for monogenic and complex diseases, which are associated with a number of ethical, legal and social implications. The ethical, legal and social issues...
Journal Articles
Community Genetics (2001) 3 (2): 45–49.
Published Online: 15 February 2001
... or safety. The publisher and the editor(s) disclaim responsibility for any injury to persons or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements. Genetics Insurance Law Public policy Ethics The insurance industry is also...
Journal Articles
Journal Articles
Community Genetics (1999) 1 (3): 142–144.
Published Online: 18 March 1999
...James E. Bowman The Federal government has had many conferences on ethical guidelines involving minorities in research and in genetic testing. Examples of governmental violation of its own ethical precepts will be given with respect to invasion of privacy of employees, dissimulation about the role...