... supporting explicit informed consent is amply supported by legislation in most states, ethical analysis and recommendations of medical advisory panels [ 2, 16,19,20,21,22,23 ]. Informed consent is specifically recommended before testing for Alpha-1, a heritable enzyme deficiency that increases likelihood...

... Anuradha Nair Diane M. Austin Philip F. Giampietro Marsh eld Clinic Research Foundation, Marsh eld, Wisc., USA Key Words Ethics Genomics Informed consent Abstract Background: The objective of this study was to measure subject perspective and reaction to participation in the Personalized Medicine...

... testing Predictive testing Genetic information Confidentiality Disclosure Family Children Public policy Parental autonomy Ethics Many professional organizations involved in pediatrics and genetics have written consensus statements regarding the issues surrounding genetic testing...

... a benefit-sharing protocol that will assess individual genetic studies on a case by case basis has been proposed. The province is moving toward legislation to establish a Provincial Health Research Ethics Board (PHREB) that will ensure that all human health research conducted in the province receives local...

... with a web presence that were offering adult genetic susceptibility testing, of which 3 offered direct-to-consumer access. In this paper, Canada – with its educated population and universal health care system – will serve as a case study for illustrating the social, ethical and policy issues (e.g...

...Claus Møldrup Objective: My aim was to examine the ethical, social and legal implications of pharmacogenomics. Method: I performed a critical review of the literature. The primary focal point is the bioethical principle discussed. The second outcome measure is the perspective of the discussion...

... prevention, and (5) provide the data necessary for evidence-based decision-making, serious scientific and social questions remain. Whether samples are identified, coded, or anonymous, biological banking raises profound ethical and legal issues pertaining to access, informed consent, privacy...

...) and of high-throughput SNP scoring technologies. It is important that this application of genetic technology is clearly differentiated from genetic tests for monogenic and complex diseases, which are associated with a number of ethical, legal and social implications. The ethical, legal and social issues...

... issues arising from the interface between genetics and insurance. Genetics Insurance Law Public policy Ethics 15 2 2001 © 2001 S. Karger AG, Basel 2001 Copyright / Drug Dosage / Disclaimer Copyright: All rights reserved. No part of this publication may be translated...

... testing is available, and has proven to be helpful in risk assessment. In addition, new technologies could be applied to FH, such as high-density DNA probe arrays and gene therapy. The use of genetic information, however, raises specific ethical concerns which indicate that DNA testing for FH should...

...James E. Bowman The Federal government has had many conferences on ethical guidelines involving minorities in research and in genetic testing. Examples of governmental violation of its own ethical precepts will be given with respect to invasion of privacy of employees, dissimulation about the role...