Background and Purposes: Primary informal caregivers play a significant role in providing care to stroke survivors after having been discharged from the hospital. Our aims were to describe the characteristics of Thai stroke caregivers and to explore their needs while providing care to their stroke relatives. Methods: Using open-ended questions, we individually interviewed 20 caregivers of stroke survivors to identify their characteristics and their own needs. Additional field notes were made during all interviews. Results: Our findings revealed that the majority of Thai informal stroke caregivers in this study were female, mostly daughters, with the exception of 2 Thai primary stroke caregivers found to be nieces. The majority of caregivers provided care to their stroke relatives 24 h per day. The four major categories of informal rehabilitation were: physical, psychological, social, and spiritual rehabilitation activities. Assistance, information and social support were the three main needs of the caregivers. Conclusion: Based on these findings, appropriate nursing information and assistance focusing on rehabilitation and stroke caregivers’ needs should be provided to Thai stroke caregivers performing informal care to ensure that both patients and caregivers have the best possible quality of life.

1.
American Heart Association: Heart disease and stroke statistics – 2004 update. Available at http://americanheart.org/downloadable/heart/1105390918119HDSStats2004Update.
2.
Murray CJ, Lopez AD: Mortality by cause for eight regions of the world: Global Burden of Disease Study. Lancet 1997;349:1269–1276.
3.
Barsi H, Ali RA: Predictors of in-hospital mortality after an acute ischaemic stroke. Neurol J Southeast Asia 2003;8:5–8.
4.
American Heart Association: Heart disease and stroke statistics – 2005 update. Available at http://americanheart.org/downloadable/heart/1105390918119HDSStats2005Update.pdf.
5.
The European Stroke Initiative (EUSI) executive committee and the EUSI writing committee: European stroke initiative recommendations for stroke management – update 2003. Cerebrovasc Dis 2003;16:311–337.
6.
Rossnagel K, Muller-Nordhorn J, Kulig M: Regional trends in cerebrovascular mortality in Germany after unification (1990–1999). Cerebrovasc Dis 2003;16:418–422.
7.
Correia M, Silva MR, Matos I, Magalhaes R, Lopes JC, Ferro JM, Silva MC: Prospective community-based study of stroke in northern portugal: incidence and case fatality in rural and urban populations. Stroke 2004;35:2048–2053.
8.
Beech R, Rudd AG, Tilling K, Wolfe CDA: Economic consequences of early inpatient discharge to community-based rehabilitation for stroke in an inner-London teaching hospital. Stroke 1999;30:729–735.
9.
Poungvarin N: Stroke in the developing world. Lancet 1998;352(suppl 3):19–22.
10.
Poungvarin N: Epidemiology of stroke; in Poungvarin N (ed): Stroke, ed 2. Bangkok, Ruenkaew Karnpim, 2001, pp 11–37.
11.
Venketasubramanian N: The epidemiology of stroke in ASEAN countries – A review. Neurol J Southeast Asia 1998;3:9–14.
12.
Thailand Ministry of Public Health: Public Health Statistics 2003. Bangkok, Ruenkaew Karnpim, 2004.
13.
Choprapawon C, Na Songkhla M, Chirawatkul A, Kachondham Y, Chayowan N: Health interview survey of the population aged 50 and over, Thailand, 1995. Thailand J Health Environ Health 1997;20:15–35.
14.
Elkins JS, Johnson SC: Thirty-year projections for deaths from ischemic stroke in the United States. Stroke 2003;34:2109–2112.
15.
Reddy MP, Reddy V: Stroke rehabilitation. Am Fam Physician 1997;55:1742–1748.
16.
Low JTS, Payne S, Roderick P: The impact of stroke on informal carers: a literature review. Soc Sci Med 1999;49:711–725.
17.
Coffey A, Atkinson P: Making Sense of Qualitative Research Data: Complementary Research Strategies. Thousand Oaks, Sage Publications, 1996.
18.
Bakas T, Austin JK, Okonkwo KF, Lewis RR, Chadwick L: Needs, concern, strategies, and advice of stroke caregivers the first 6 months after discharge. J Neurosci Nurs 2002;34:242–251.
19.
Dewey HM, Thrift AG, Mihalopoulos C, Carter R, Macdonell RAL, McNeil JJ, Donnan GA: Informal care for stroke survivors: result from the North East Melbourne Stroke Incidence Study (NEMESIS). Stroke 2002;33:1028–1033.
20.
Grant JS, Glandon GL, Elliott TR, Giger JN, Weaver M: Caregiving problems and feelings experienced by family caregivers of stroke survivors the first month after discharge. Int J Rehabil Res 2004;27:105–111.
21.
Subgranon R, Lund DA: Maintaining caregiving at home: a culturally sensitive grounded theory of providing care in Thailand. J Transcult Nurs 2000;11:166–173.
22.
Sudlow CLM, Warlow CP: Comparing stroke incidence worldwide: what makes studies comparable? Stroke 1996;27:550–558.
23.
Burman ME: Family caregiver expectations and management of the stroke trajectory. Rehabil Nurs 2001;26:94–99.
24.
Phupaiboon R: Family Nursing: Concept, Theory and Practice. Khonkaen, Khonkaen Kanpim,1994.
25.
Payutto PK: Good, Evil and Beyond: Kamma in the Buddha’s Teaching. Bangkok, Buddhadhamma Foundation Publications,1993.
26.
Khantipalo B: Buddhism Explained. Chiangmai, Silkworm Book,1994.
27.
Azerodo Z: O doente com AVC e o prestador de cuidados. Geriatria 2003;154:27–30.
28.
McLean J, Roper-Hall A, Mayer P, Main A: Service needs of stroke survivors and their informal carers: a pilot study. J Adv Nurs 1991;16:559–564.
29.
Jönsson AC, Lindgren I, Hallström B, Norrving B, Lindgren A: Determinants of quality of life in stroke survivors and their informal caregivers. Stroke 2005;36:803–808.
30.
Han B, Haley WE: Family caregiving for patients with stroke: review and analysis. Stroke 1999;30:1478–1485.
31.
McKevitt C, Redfern J, Mold F, Wolfe C: Qualitative studies of stroke: a systematic review. Stroke 2004;35:1499–1505.
32.
Wachters-Kaufmann CMS: Personal account of stroke experiences. Patient Educ Couns 2000;41:295–303.
33.
O’Mahony PG, Rodgers H, Thomson RG, Dobson R, James OFW: Satisfaction with information and advice received by stroke patients. Clin Rehabil 1997;11:68–72.
34.
Glass TA, Maddox GL: The quality and quantity of social support: stroke recovery as psychosocial transition. Soc Sci Med 1992;34:1249–1261.
35.
Pierce LL, Finn MG, Steiner V: Families dealing with stroke desire information about self-care needs. Rehabil Nurs 2004;29:14–17.
36.
Wellwood I, Dennis MS, Warlow CP: Perceptions and knowledge of stroke among surviving patients with stroke and their carers. Age Ageing 1994;23:293–298.
37.
van Veenendaal H, Grinspun DR, Adriaanse HP: Educational needs of stroke survivors and their family members perceived by themselves and by health professionals. Patient Educ Couns 1996;28:265–276.
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