Abstract
Introduction: Patients are increasingly turning to other sources for their health information. Social media has become mainstream, and the easy access to online communities, health professionals, and shared experiences of other patients has made social media a place where many patients turn to. Methods: In this qualitative report, 2 patients who have had breast cancer describe the reasons why they use social media, what they perceive the advantages and disadvantages are, and what the impact of social media has been through their cancer treatment and beyond. Results: The reasons why patients turn to social media are varied. These can include information gathering, peer support, shared experiences, and advocacy. There appear to be advantages and disadvantages; however, overall, the impact seems to be a positive one when used judiciously. Discussion: It is clear that social media has a role to play in healthcare, whether by providing meaningful social connections, delivery of information, or psychological support. Healthcare professionals perhaps should consider the importance of social media in their practice.
References
1.
Pew Research Center
Internet Science and Tech
Internet Health Resources
2003
. Available from: www.pewresearch.org.2.
Sung
H
, Ferlay
J
, Siegel
RL
, Laversanne
M
, Soerjomataram
I
, Jemal
A
. Global cancer statistics 2020: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries
. CA Cancer J Clin
. 2021 May
71
3
209
49
.3.
McHugh
SM
, Corrigan
M
, Morney
N
, Sheikh
A
, Lehane
E
, Hill
ADK
. A quantitative assessment of changing trends in internet usage for cancer information
. World J Surg
. 2011
;35
(2
):253
–7
.4.
Quinn
EM
, Corrigan
MA
, McHugh
SM
, Murphy
D
, O’Mullane
J
, Hill
ADK
. Breast cancer information on the internet: analysis of accessibility and accuracy
. Breast
. 2012 August
21
4
514
7
.5.
Nguyen
SKA
, Ingledew
P
. Tangled in the breast cancer web: an evaluation of the usage of web-based information resources by breast cancer patients
. J Cancer Educ
. 2013
;28
(4
):662
–8
.6.
Ream
E
, Blows
E
, Scanlon
K
, Richardson
A
. An investigation of the quality of breast cancer information provided on the internet by voluntary organisations in Great Britain
. Patient Educ Couns
. 2009
;76
(1
):10
–5
.7.
Warren
E
, Footman
K
, Tinelli
M
, McKee
M
, Knai
C
. Do cancer-specific websites meet patient’s information needs
. Patient Educ Couns
. 2014
;95
(1
):126
–36
.8.
Smailhodzic
E
, Hooijsma
W
, Boonstra
A
, Langley
DJ
. Social media use in healthcare: a systematic review of effects on patients and on their relationship with healthcare professionals
. BMC Health Serv Res
. 2016
;16
(1
):442
.9.
Lau
AYS
, Siek
KA
, Fernandez-Luque
L
, Tange
H
, Chhanabhai
P
, Li
SY
. The role of social media for patients and consumer health. Contribution of the IMIA Consumer Health Informatics Working Group
. Yearb Med Inform
. 2011 Aug
6
131
8
.10.
Thomas
TH
, Taylor
S
, Rosenzweig
M
, Schenker
Y
, Bender
C
. Self-advocacy behaviors and needs in women with advanced cancer: assessment and differences by patient characteristics
. Int J Behav Med
. 2023
;30
(2
):211
–20
.11.
Kim
E
, Hou
J
, Han
JY
, Himelboim
I
. Predicting retweeting behavior on breast cancer social networks: network and content characteristics
. J Health Commun
. 2016
;21
(4
):479
–86
.12.
Attai
DJ
, Cowher
MS
, Al-Hamadani
M
, Schoger
JM
, Staley
AC
, Landercasper
J
. Twitter social media is an effective tool for breast cancer patient education and support: patient-reported outcomes by survey
. J Med Internet Res
. 2015 Jul 30
17
7
e188
.13.
Johansson
V
, Islind
AS
, Lindroth
T
, Angenete
E
, Gellerstedt
M
. Online communities as a driver for patient empowerment: systematic review
. J Med Internet Res
. 2021
;23
(2
):e19910
.14.
Capurro
D
, Cole
K
, Echavarría
MI
, Joe
J
, Neogi
T
, Turner
AM
. The use of social networking sites for public health practice and research: a systematic review
. J Med Internet Res
. 2014
;16
(3
):e79
.15.
Ruco
A
, Dossa
F
, Tinmouth
J
, Llovet
D
, Jacobson
J
, Kishibe
T
. Social media and mHealth technology for cancer screening: systematic review and meta-analysis
. J Med Internet Res
. 2021 Jul 30
23
7
e26759
.16.
Thackeray
R
, Burton
SH
, Giraud-Carrier
C
, Rollins
S
, Draper
CR
. Using twitter for breast cancer prevention: an analysis of breast cancer awareness month
. BMC Cancer
. 2013 Oct 29
13
1
508
.17.
Akers
L
, Gordon
JS
. Using Facebook for large-scale online randomized clinical trial recruitment: effective advertising strategies
. J Med Internet Res
. 2018
;20
(11
):e290
.18.
Whitaker
C
, Stevelink
S
, Fear
N
. The use of Facebook in recruiting participants for health research purposes: a systematic review
. J Med Internet Res
. 2017
;19
(8
):e290
.19.
Connor
AE
, Dibble
KE
, Visvanathan
K
. Utilizing social media advertisements and participant social networks to recruit african American breast cancer survivors: design and rationale
. Front Public Health
. 2022
;10
:931102
.20.
Suarez-Lledo
V
, Alvarez-Galvez
J
. Prevalence of health misinformation on social media: systematic review
. J Med Internet Res
. 2021
;23
(1
):e17187
.21.
Wang
Y
, McKee
M
, Torbica
A
, Stuckler
D
. Systematic literature review on the spread of health-related misinformation on social media
. Soc Sci Med
. 2019 Nov 01
240
.22.
Henzel
V
, Håkansson
A
. Hooked on virtual social life. Problematic social media use and associations with mental distress and addictive disorders
. PLoS One
. 2021
;16
(4
):e0248406
.23.
Forgie
EME
, Lai
H
, Cao
B
, Stroulia
E
, Greenshaw
AJ
, Goez
H
. Social media and the transformation of the physician-patient relationship: viewpoint
. J Med Internet Res
. 2021 Dec 24
23
12
e25230
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