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Keywords: Unmet need
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Journal Articles

Time for Change? The Why, What and How of Promoting Innovation to Tackle Rare Diseases – Is It Time to Update the EU’s Orphan Regulation? And if so, What Should be Changed?

Subject Area:
Audiology and Speech , Cardiovascular System , Dermatology , Endocrinology , Further Areas , Gastroenterology , General Medicine , Genetics , Geriatrics and Gerontology , Immunology and Allergy , Nephrology , Neurology and Neuroscience , Oncology , Ophthalmology , Pathology and Cell Biology , Pharmacology , Pneumology , Psychiatry and Psychology , Public Health , Women's and Children's Health
Denis Horgan, Barbara Moss, Stefania Boccia, Maurizio Genuardi, Maciej Gajewski, Gabriele Capurso, Pierre Fenaux, Beatrice Gulbis, Mariangela Pellegrini, Maria del Mar Mañú Pereira, Victoria Gutiérrez Valle, Iñaki Gutiérrez Ibarluzea, Alastair Kent, Ivana Cattaneo, Beata Jagielska, Ivica Belina, Birute Tumiene, Adrian Ward, Marisa Papaluca
Journal: Biomedicine Hub
Biomed Hub (2020) 5 (2): 1–11.
https://doi.org/10.1159/000509272
Published Online: 17 July 2020
... disease Regulatory Member states Orphan regulation European Commission Patients Personalised healthcare Incentives Challenges Access Biosimilars Unmet need Reimbursement Diagnostics Biomarkers Inequality Treatment Data Ultra-rare disease Empowerment Patient Citizens Access...
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Journal Articles

Making Change Happen in Health

Subject Area:
Audiology and Speech , Cardiovascular System , Dermatology , Endocrinology , Further Areas , Gastroenterology , General Medicine , Genetics , Geriatrics and Gerontology , Immunology and Allergy , Nephrology , Neurology and Neuroscience , Oncology , Ophthalmology , Pathology and Cell Biology , Pharmacology , Pneumology , Psychiatry and Psychology , Public Health , Women's and Children's Health
Denis Horgan, Carin Smand, Anastassia Negrouk, Denis Lacombe
Journal: Biomedicine Hub
Biomed Hub (2017) 2 (Suppl. 1): 1–8.
https://doi.org/10.1159/000479547
Published Online: 21 November 2017
... or of their effectiveness, quality or safety. The publisher and the editor(s) disclaim responsibility for any injury to persons or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements. Unmet need Research Innovation Inequalities Health technology...
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