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Journal Articles

Time for Change? The Why, What and How of Promoting Innovation to Tackle Rare Diseases – Is It Time to Update the EU’s Orphan Regulation? And if so, What Should be Changed?

Open Access
Subject Area:
Dermatology , Pharmacology , Endocrinology , Pneumology , Gastroenterology , Nephrology , Public Health , Women's and Children's Health , Genetics , Oncology , General Medicine , Neurology and Neuroscience , Further Areas , Psychiatry and Psychology , Geriatrics and Gerontology , Audiology and Speech , Ophthalmology , Immunology and Allergy , Cardiovascular System , Pathology and Cell Biology
Denis Horgan, Barbara Moss, Stefania Boccia, Maurizio Genuardi, Maciej Gajewski, Gabriele Capurso, Pierre Fenaux, Beatrice Gulbis, Mariangela Pellegrini, Maria del Mar Mañú Pereira, Victoria Gutiérrez Valle, Iñaki Gutiérrez Ibarluzea, Alastair Kent, Ivana Cattaneo, Beata Jagielska, Ivica Belina, Birute Tumiene, Adrian Ward, Marisa Papaluca
Journal: Biomedicine Hub
Biomed Hub (2020) 5 (2): 1–11.
https://doi.org/10.1159/000509272
Published Online: 17 July 2020
...; Birute Tumiene; Adrian Ward; Marisa Papaluca Since developments are global in the healthcare arena, more should be done to align EU and other big markets’ regulatory practices for rare disease patients. Notwithstanding efforts and cooperation between the US and EU aimed to harmonize their strategic plans...
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Journal Articles

Prevention, Early Dialogue and Education in the Personalised Healthcare Era

Open Access
Subject Area:
Dermatology , Pharmacology , Endocrinology , Pneumology , Gastroenterology , Nephrology , Public Health , Women's and Children's Health , Genetics , Oncology , General Medicine , Neurology and Neuroscience , Further Areas , Psychiatry and Psychology , Geriatrics and Gerontology , Audiology and Speech , Ophthalmology , Immunology and Allergy , Cardiovascular System , Pathology and Cell Biology
Denis Horgan, Mario Pazzagli
Journal: Biomedicine Hub
Biomed Hub (2017) 2 (Suppl. 1): 1–11.
https://doi.org/10.1159/000479492
Published Online: 21 November 2017
...Denis Horgan; Mario Pazzagli In the EU, the “portrait” of healthcare has undergone many changes down the years, with many adaptations as the EU has evolved. The role of patients has become much more significant as they have gained greater knowledge; there have been giant leaps in innovation, while...
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