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Journal Articles

Time for Change? The Why, What and How of Promoting Innovation to Tackle Rare Diseases – Is It Time to Update the EU’s Orphan Regulation? And if so, What Should be Changed?

Open Access
Subject Area:
Psychiatry and Psychology , Further Areas , Nephrology , Public Health , Gastroenterology , Neurology and Neuroscience , Audiology and Speech , General Medicine , Pharmacology , Dermatology , Pneumology , Endocrinology , Pathology and Cell Biology , Women's and Children's Health , Immunology and Allergy , Oncology , Cardiovascular System , Genetics , Ophthalmology , Geriatrics and Gerontology
Denis Horgan, Barbara Moss, Stefania Boccia, Maurizio Genuardi, Maciej Gajewski, Gabriele Capurso, Pierre Fenaux, Beatrice Gulbis, Mariangela Pellegrini, Maria del Mar Mañú Pereira, Victoria Gutiérrez Valle, Iñaki Gutiérrez Ibarluzea, Alastair Kent, Ivana Cattaneo, Beata Jagielska, Ivica Belina, Birute Tumiene, Adrian Ward, Marisa Papaluca
Journal: Biomedicine Hub
Biomed Hub (2020) 5 (2): 1–11.
https://doi.org/10.1159/000509272
Published Online: 17 July 2020
... implementation mechanisms in the current regulatory context, and suggests some improvements that could maximise its benefits and boost rare disease research even further. Rare disease Regulatory Member states Orphan regulation European Commission Patients Personalised healthcare Incentives Challenges...
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Journal Articles

Propelling Health Care into the Twenties

Open Access
Subject Area:
Psychiatry and Psychology , Further Areas , Nephrology , Public Health , Gastroenterology , Neurology and Neuroscience , Audiology and Speech , General Medicine , Pharmacology , Dermatology , Pneumology , Endocrinology , Pathology and Cell Biology , Women's and Children's Health , Immunology and Allergy , Oncology , Cardiovascular System , Genetics , Ophthalmology , Geriatrics and Gerontology
Denis Horgan, Bettina Borisch, Etienne Richer, Chiara Bernini, Dipak Kalra, Mark Lawler, Gennaro Ciliberto, Hendrik Van Poppel, Angelo Paradiso, Peter Riegman, Stefano Triberti, Andres Metspalu, Arturo Chiti, Elizabeth Macintyre, Stefania Boccia, Fabien Calvo, Desmond Schatz, Jasmina Koeva-Balabanova, Bengt Jonsson
Journal: Biomedicine Hub
Biomed Hub (2020) 5 (2): 1–53.
https://doi.org/10.1159/000508300
Published Online: 27 May 2020
... and authoritative reviews of health care in the EU Member States, and on the newly acquired spirit of readiness and pragmatism among European officials to embrace change and innovative technologies in a new decade. It highlights the attention now being given by policymakers to incentives, innovation, and investment...
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Journal Articles

A Disruptive Dinner Guest

Open Access
Subject Area:
Psychiatry and Psychology , Further Areas , Nephrology , Public Health , Gastroenterology , Neurology and Neuroscience , Audiology and Speech , General Medicine , Pharmacology , Dermatology , Pneumology , Endocrinology , Pathology and Cell Biology , Women's and Children's Health , Immunology and Allergy , Oncology , Cardiovascular System , Genetics , Ophthalmology , Geriatrics and Gerontology
Denis Horgan, Alastair Kent, Stephen McMahon
Journal: Biomedicine Hub
Biomed Hub (2017) 2 (Suppl. 1): 1–3.
https://doi.org/10.1159/000479488
Published Online: 21 November 2017
... and the editor(s) disclaim responsibility for any injury to persons or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements. Collaboration EU Presidency Technology Healthcare Politics Member states Reaching agreement on challenging...
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