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Keywords: Challenges
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Journal Articles

Population Genome Programs across the Middle East and North Africa: Successes, Challenges, and Future Directions

Open Access
Subject Area:
General Medicine , High Impact Articles in General Medicine
Hagar Ateia, Pauline Ogrodzki, Hannah V. Wilson, Subhashini Ganesan, Rabih Halwani, Ashish Koshy, Walid A. Zaher
Journal: Biomedicine Hub
Biomed Hub (2023) 8 (1): 60–71.
https://doi.org/10.1159/000530619
Published Online: 14 September 2023
... (PGPs) conducted in the Middle East and North African (MENA) region. This region has high prevalence of genetic diseases and significant health challenges as well as being a significantly underrepresented population in public genetic databases. The majority of ongoing PGPs represent regions in Europe...
View articletitled, Population Genome Programs across the Middle East and North Africa: Successes, Challenges, and Future Directions
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Journal Articles

Societal Need for Interdisciplinary Ageing Research: An International Alliance of Research Universities “Ageing, Longevity and Health” Stream (IARU-ALH) Position Statement

Open Access
Subject Area:
Dermatology , Neurology and Neuroscience , Women's and Children's Health , Further Areas , Ophthalmology , Endocrinology , Oncology , Gastroenterology , Pathology and Cell Biology , General Medicine , Pharmacology , Genetics , Audiology and Speech , Pneumology , Geriatrics and Gerontology , Cardiovascular System , Psychiatry and Psychology , Immunology and Allergy , Nephrology , Public Health
Nicolas Cherbuin, Katsuya Iijima, Sebastiana Kalula, Rahul Malhotra, Lene Juel Rasmussen, Angelique Chan, Louise Lafortune, Sarah Harper, Xiaoying Zheng, David Lindeman, Erin Walsh, Rafat Hussain, Richard Burns, Maria Kristiansen, Ikuko Sugawara, Bokyung Son, Tomoki Tanaka, Stefanie Buckner, Jaco Hoffman, Marc Combrinck
Journal: Biomedicine Hub
Biomed Hub (2021) 6 (1): 42–47.
https://doi.org/10.1159/000513513
Published Online: 25 February 2021
... Hoffman; Marc Combrinck Ageing is a global concern with major social, health, and economic implications. While individual countries seek to develop responses to immediate, pressing needs, international attention and collaboration is required to most effectively address the multifaceted challenges...
View articletitled, Societal Need for Interdisciplinary Ageing Research: An International Alliance of Research Universities “Ageing, Longevity and Health” Stream (IARU-ALH) Position Statement
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Journal Articles

Time for Change? The Why, What and How of Promoting Innovation to Tackle Rare Diseases – Is It Time to Update the EU’s Orphan Regulation? And if so, What Should be Changed?

Open Access
Subject Area:
Dermatology , Neurology and Neuroscience , Women's and Children's Health , Further Areas , Ophthalmology , Endocrinology , Oncology , Gastroenterology , Pathology and Cell Biology , General Medicine , Pharmacology , Genetics , Audiology and Speech , Pneumology , Geriatrics and Gerontology , Cardiovascular System , Psychiatry and Psychology , Immunology and Allergy , Nephrology , Public Health
Denis Horgan, Barbara Moss, Stefania Boccia, Maurizio Genuardi, Maciej Gajewski, Gabriele Capurso, Pierre Fenaux, Beatrice Gulbis, Mariangela Pellegrini, Maria del Mar Mañú Pereira, Victoria Gutiérrez Valle, Iñaki Gutiérrez Ibarluzea, Alastair Kent, Ivana Cattaneo, Beata Jagielska, Ivica Belina, Birute Tumiene, Adrian Ward, Marisa Papaluca
Journal: Biomedicine Hub
Biomed Hub (2020) 5 (2): 1–11.
https://doi.org/10.1159/000509272
Published Online: 17 July 2020
... into account the considerations and challenges to diagnose and treat different rare diseases and improve quality of life. Deliberative processes with multi-stakeholders’ involvement for reimbursement should be considered. This paper explores the successes and limitation of both the regulation and its...
View articletitled, Time for Change? The Why, What and How of Promoting Innovation to Tackle Rare Diseases – Is It Time to Update the EU’s Orphan Regulation? And if so, What Should be Changed?
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