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Journal Articles

Time for Change? The Why, What and How of Promoting Innovation to Tackle Rare Diseases – Is It Time to Update the EU’s Orphan Regulation? And if so, What Should be Changed?

Open Access
Subject Area:
Dermatology , Oncology , Genetics , Cardiovascular System , Psychiatry and Psychology , Geriatrics and Gerontology , Nephrology , Public Health , Further Areas , Pathology and Cell Biology , Gastroenterology , Pharmacology , General Medicine , Audiology and Speech , Pneumology , Endocrinology , Ophthalmology , Immunology and Allergy , Neurology and Neuroscience , Women's and Children's Health
Denis Horgan, Barbara Moss, Stefania Boccia, Maurizio Genuardi, Maciej Gajewski, Gabriele Capurso, Pierre Fenaux, Beatrice Gulbis, Mariangela Pellegrini, Maria del Mar Mañú Pereira, Victoria Gutiérrez Valle, Iñaki Gutiérrez Ibarluzea, Alastair Kent, Ivana Cattaneo, Beata Jagielska, Ivica Belina, Birute Tumiene, Adrian Ward, Marisa Papaluca
Journal: Biomedicine Hub
Biomed Hub (2020) 5 (2): 1–11.
https://doi.org/10.1159/000509272
Published Online: 17 July 2020
... Access Biosimilars Unmet need Reimbursement Diagnostics Biomarkers Inequality Treatment Data Ultra-rare disease Empowerment Patient Citizens Access [email protected] 4 05 2020 9 06 2020 17 7 2020 © 2020 The Author(s) Published by S. Karger AG, Basel 2020...
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Journal Articles

Propelling Health Care into the Twenties

Open Access
Subject Area:
Dermatology , Oncology , Genetics , Cardiovascular System , Psychiatry and Psychology , Geriatrics and Gerontology , Nephrology , Public Health , Further Areas , Pathology and Cell Biology , Gastroenterology , Pharmacology , General Medicine , Audiology and Speech , Pneumology , Endocrinology , Ophthalmology , Immunology and Allergy , Neurology and Neuroscience , Women's and Children's Health
Denis Horgan, Bettina Borisch, Etienne Richer, Chiara Bernini, Dipak Kalra, Mark Lawler, Gennaro Ciliberto, Hendrik Van Poppel, Angelo Paradiso, Peter Riegman, Stefano Triberti, Andres Metspalu, Arturo Chiti, Elizabeth Macintyre, Stefania Boccia, Fabien Calvo, Desmond Schatz, Jasmina Koeva-Balabanova, Bengt Jonsson
Journal: Biomedicine Hub
Biomed Hub (2020) 5 (2): 1–53.
https://doi.org/10.1159/000508300
Published Online: 27 May 2020
... medicine Public health Pharmacoeconomics Health economics Frameworks Reimbursement Personalised health care Diagnostics Biomarkers, optimal Real-world data Data-translational research Empowerment patient Citizens Access 19 03 2020 29 04 2020 27 5 2020 © 2020 The Author...
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Journal Articles

How Many Chances Has Europe Got

Open Access
Subject Area:
Dermatology , Oncology , Genetics , Cardiovascular System , Psychiatry and Psychology , Geriatrics and Gerontology , Nephrology , Public Health , Further Areas , Pathology and Cell Biology , Gastroenterology , Pharmacology , General Medicine , Audiology and Speech , Pneumology , Endocrinology , Ophthalmology , Immunology and Allergy , Neurology and Neuroscience , Women's and Children's Health
Denis Horgan
Journal: Biomedicine Hub
Biomed Hub (2017) 2 (Suppl. 1): 1–8.
https://doi.org/10.1159/000479548
Published Online: 21 November 2017
... swiftly and coming more-and-more to the fore, while the potential value of Big Data cannot be underestimated. It is incumbent upon all stakeholders in the realm of healthcare - and especially the policymakers and legislators - to ensure that every citizen of Europe has the same rights and access...
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Journal Articles

The Long and the Short of Missing Medicines

Open Access
Subject Area:
Dermatology , Oncology , Genetics , Cardiovascular System , Psychiatry and Psychology , Geriatrics and Gerontology , Nephrology , Public Health , Further Areas , Pathology and Cell Biology , Gastroenterology , Pharmacology , General Medicine , Audiology and Speech , Pneumology , Endocrinology , Ophthalmology , Immunology and Allergy , Neurology and Neuroscience , Women's and Children's Health
Denis Horgan, Robin Doeswijk
Journal: Biomedicine Hub
Biomed Hub (2017) 2 (Suppl. 1): 1–4.
https://doi.org/10.1159/000481565
Published Online: 21 November 2017
..., Basel 2017 Open Access License / Drug Dosage / Disclaimer This article is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (CC BY-NC-ND). Usage and distribution for commercial purposes as well as any distribution of modified material requires...
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